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Advocacy Government Affairs Questionnaire

The Sjögren's Syndrome Foundation encourages you to join our advocacy effort. We offer an opportunity for concerned individuals to unite as one voice and help shape public policy as it relates to life with Sjögren's syndrome. You can spend as much (or as little) time as you choose in this effort. By joining the SSF Government Contacts Network, you will educate members of Congress about Sjögren's syndrome and autoimmunity and develop policies and programs to benefit people with Sjögren's. We will be developing a special "Legislative Alert" to mail members of this network. Just let us know if you can attend meetings or hearing, testify, meet with legislators, organize letter-writing campaigns, or contact your representatives.

Government Affairs Questionnaire

Please Note: All fields are required unless otherwise indicated

1. Are you interested in volunteering to help with government issues?
    Organize and oversee letter-writing campaigns or other aspects of legislative initiatives and information-gathering
    Write letters
    Visit legislators
    Attend meetings or hearings
    In the Washington, DC area
    In my state capitol of
    Other:

2. Do you have contacts in government?
    Federal Legislators in Congress
    White House - President and VP or families, White House staff
    Food and Drug Administration (FDA) in Rockville, MD
    Center for Disease Control (CDC) in Atlanta, GA
    National Institutes of Health (NIH) in Bethesda, MD
    Other Health & Human Service departments
    State Legislators
    Other
    (Please list name of your contact and your relationship)
    I do not have contacts in government

3. Your contact information:

        Name:

        Address 1:
        Address 2: (optional)
        City:
        State:
        Zip:
        Tel: (daytime)
(evening) (optional)
        Fax: (optional)
        E-mail:

4. What is your preferred means of contact?
    email
    telephone
    snail mail
    other


5. Best hours to contact you?
    weekday mornings
    weekday afternoons
    weekday evenings
    weekend mornings
    weekend afternoons
    weekend evenings


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