This is Sjögren's- You are not alone!

The Foundation knows how isolating being diagnosed with an invisible illness can be, but you are not alone. There are an estimated 4 million Americans suffering from Sjögren’s, both men and women of different ages and ethnicities.

With the launch of the SSF 5-Year Breakthrough Goal, 50in5: “To shorten the time to diagnose Sjögren’s by 50% in 5 years” we are also hoping to transform how Sjögren’s is understood.

In this section of our website, patients share their journey with Sjögren's starting from their first thought after being diagnosed to where they are now.

We hope these stories inspire you, like they inspired us.


Erin's Journey


Sara's Journey

Lucy's Journey

AJ
AJ's Journey


Renee's Journey


Shelley's Journey


Joe's Journey


Melaca's Journey


Abby's Journey


KatherineKatherine's Journey

JenniferJennifer's Journey


Patricia's Journey

JohnJohn's Journey

Karen's Journey 



Nancy's Journey 


Shelly's Journey


Connie's Journey

Donna's Journey


Iris's Journey

Sarah's Journey

 PhiliciaPhlicia's Journey

Sheila
Sheila's Journey

 


Beverly's Journe
y's


Share Your Story with us!


Whether you are a patient, doctor, loved one or family member, we want to know your own personal experience with Sjögren's.  

When submitting your story:

  •     • Stay within 250 word
  •     • Include aspects of how Sjögren's has affected your life and ways you have been able to effectively cope with your symptoms
  •     • Include a personal few words of inspiration
  •     • At the beginning of your story, please complete the following phrase: “When I was diagnosed with Sjögren's, my first thought was…”
  •     • And don’t forget to include a picture of you!

Email your story to tms@sjogrens.org with the subject “Faces of Sjögren’s.” Together we will conquer Sjögren’s!