SSF Launches 5-Year Breakthrough Goal
(Article from The Moisture Seekers January 2012)
The Sjögren’s Syndrome Foundation’s Board of Directors is proud that after months of planning and the involvement of many volunteers, patients and physicians, we have set a new aggressive 5-Year Breakthrough Goal that will change the face of Sjögren’s. Our new breakthrough goal is:
“To shorten the time to diagnose Sjögren’s by 50% in 5 years!”
That means, by 2017, the SSF hopes to shorten the time it takes to get diagnosed with Sjögren’s. As many of you know, the average time from the onset of symptoms to a diagnosis is over 5 years and we all agree that this is too long!
Our new Goal will focus the SSF on increasing awareness of the general public but also of the healthcare providers who are missing the diagnosis. “We cannot sit on the sidelines and let those patients suffer any longer. That is why the SSF Board of Directors is taking action to ensure we do everything we can to increase awareness and to help those patients yet to be diagnosed,” said Steven Taylor, SSF CEO.
Taylor continued, “although we are focusing on getting more patients diagnosed, the SSF will not take any attention away from helping those already diagnosed with Sjögren’s. We will be adding new resources, developing new educational programs and serving as support to patients and their families.” Taylor has been quoted as saying, “the SSF was founded by a patient, Elaine Harris, for patients and the SSF will never lose that focus.”
The Foundation plans to achieve the 5-year Breakthrough Goal by working on three specific action items:
- Increasing public awareness
- Increasing involvement from our friends and partners
- Increasing education and awareness among healthcare professionals
We have set an ambitious 5-year timeline with a series of consecutive goals and actions that we plan to accomplish each year along the way. Our hope is that by getting more patients diagnosed, all patients will benefit because doctors will start to take note of Sjögren’s as they see more and more Sjögren’s patients in their practices! “Physicians will need to become more knowledgeable about Sjögren’s, and all patients will see a benefit from that,” said Taylor.
It will take an army to achieve our goal, but just imagine if we all band together – how we could change the face of Sjögren’s for all patients, present and future!