Did you miss our 2013 National Patient Conference?  

Get all the vital information you need on an audio CD!   

Six of our most popular talks from the 2013 National Patient Conference are available for purchase as audio CDs. Each talk is 30-40 minutes long and each CD comes enclosed with a printout of the presentation so you can follow along with the talk.

• Overview of Sjögren’s Syndrome by Dr. Frederick Vivino
• Dry Eye and Sjögren’s by Dr. Mina Massaro-Giordano
• Sex and Living with Sjögren’s by Dr. Anne Burke
• What Do the Numbers Mean? Understanding Blood Changes and Test Results by Dr. Guada Respicio
• Neurological Complications and Sjögren’s by Dr. Julius Birnbaum

Buy just the talks you want to hear or purchase the whole set! Whether you attended the conference or not, these audio CDs are an excellent way to have a permanent resource with some of the most vital information available to Sjögren's patients. 

Click here to order them online or call our office toll-free at 800-475-6473.

Remember, if you order online you must sign in first to receive the Member discount.

Join the SSF today and receive these great membership benefits (and much more)!

• The Moisture Seekers newsletter: This monthly print newsletter contains the latest information on Sjögren's, practical tips for daily living, and answers to medical questions from the experts. Curious what The Moisture Seekers looks like? View an electronic sample of the newsletter by downloading it here.

• Exclusive access to the members-only section of sjogrens.org, featuring resources unavailable to other site visitors such as archives of the most popular newsletter articles, our online product guide and access to our online community.

• Members-only discounts on a variety of products and services such as The Sjögren's Syndrome Handbook and SSF National Patient Conferences.

• Providing the Foundation with one more voice to increase awareness, educate others, and encourage research – all of which help in the fight to conquer Sjögren's!
   

If you have any questions or want to contact the Foundation, please call us at 1-800-475-6473. Remember, you are not alone. The Sjögren’s Syndrome Foundation staff and volunteers are working on your behalf to conquer Sjögren’s.

New Sjögren's Merchandise: Awareness Wristbands

  By purchasing these awareness wristbands, you are helping us achieve our 5-Year Breakthrough Goal: 
"To shorten the time to diagnose Sjögren's by 50% in 5 years!"

 Wording: Conquering Sjögren's  - www.sjogrens.org 

Pack of 10 for $15.00
Pack of 20 for $25.00

Click here to Purchase 

Click Here to read the SSF 5-Year Breakthrough Goal, 1 Year Update!

How a year flies by!

Faces of Sjögren's- You are not alone!

Click Here to See the New Faces of Sjögren's Page on our Website!

The Foundation knows how isolating being diagnosed with an invisible illness can be, but you are not alone. There are an estimated 4 million Americans suffering from Sjögren’s, both men and women of different ages and ethnicities.

With the launch of the SSF 5-Year Breakthrough Goal, 50in5: “To shorten the time to diagnose Sjgoren’s by 50% in 5 years” we are also hoping to change how Sjogren’s is understood.

In this section of our website, patients share their journey with Sjögren's starting from their first thought after being diagnosed to where they are now.

Click Here to See the New Faces of Sjögren's Page on our Website!

The Sjögren’s Syndrome Foundation proudly announced a new 5- year breakthrough goal in the January issue of The Moisture Seekers.

 “To shorten the time to diagnose Sjögren’s by 50% in 5 years!”

Click Here to find out more about the SSF's new Breakthrough Goal!

Read our Press Release below or Click Here for a Copy

  Sjögren's Syndrome Foundation Launches 5-Year Breakthrough Goal

The Sjögren's Syndrome Foundation (SSF) is kicking off 2012 by launching a bold 5-Year Breakthrough Goal:

 “To shorten the time to diagnose Sjögren’s by 50% in 5 years!”

Sjögren’s ("SHOW-grins") is the second most prevalent autoimmune disorder, striking as many as 4 million Americans with an estimated 3 million cases currently undiagnosed.  Early diagnosis and treatment are important for preventing complications with Sjögren’s. Unfortunately, reaching a diagnosis is often difficult and has been found to take an average of over 5 years from the onset of symptoms.

Steven Taylor, CEO of the SSF, says “We cannot sit on the sidelines and let those patients suffer any longer. That is why the SSF is taking action to ensure we do everything we can to increase awareness and help those patients yet to be diagnosed.”

Sjögren’s is a systemic disease in which the body’s immune system mistakenly attacks its own moisture producing glands. The hallmark symptoms are dry eyes and dry mouth, but fatigue, muscle and joint pain are also prominent symptoms. Serious manifestations can occur, such as life-threatening lung involvement, central nervous system complications and disorders of cognitive functioning. Nine out of ten patients are women with an average age of onset in the late 40’s. However, Sjögren’s can occur in all age groups, even in children.

Venus Williams, the tennis star who withdrew from the US open after announcing her Sjögren’s diagnosis, stated that she had suffered with issues from Sj ögren’s for a while without being diagnosed.  “Being diagnosed with Sjögren’s was a huge relief because I finally knew what was happening with my body,” said Williams, illustrating one example of what a correct diagnosis means for Sjögren’s sufferers.

With an aggressive timeline of actions and goals to accomplish ahead, the SSF believes this initiative will change the face of Sjögren’s. “By getting more patients diagnosed, physicians will become more knowledgeable about Sjögren’s and all patients will see a benefit from that,” states Taylor.

To find out more about the 5-Year Breakthrough Goal and how you can help, contact the SSF office at 1-800-475-6473 or visit their website, www.sjogrens.org.

 **Arrangements can be made for interviews with local Sjögren’s  patients, healthcare professionals as well as Steven Taylor, CEO, of the Sjögren’s Syndrome Foundation.**

April is Sjögren’s Awareness Month!

Learn how you can help increase Sjögren's awareness this April by going BOLD BLUE by clicking here!

Click Here to learn about the priorities determined for the 2013 SSF Research Grants

Applications due February 1, 2013