The SSF is excited to announce the publication of the first U.S. Rheumatology Clinical Practice Guidelines for Sjögren's.

Published in Arthritis Care and Research, these rheumatology guidelines were designed to improve quality and consistency of care for Sjögren's patients by offering clinicians recommendations for disease management. Among the recommendations, the guidelines address issues such as the use of biologic agents, management of fatigue, and inflammatory musculoskeletal pain in systemic Sjögren's. Click here to read more.

View Guidelines Published in the Rheumatic Diseases Clinics of North America

Did you miss our 2016 National Patient Conference?  

The most popular talks from the 2016 SSF Conference are available for purchase as audio CDs. Each talk is 30-40 minutes long and comes with the handouts used by the presenter so you can follow along with the talk.

Presentation topics include:

  •   • Sjögren's Overview 
  •   • Oral Manifestations of Sjögren's 
  •   • Dry Skin and Dermatological Issues 
  •   • An Inside Look at Sjögren's & Gluten-Free Diets 
  •   • Ocular Manifestations of Sjögren's 
  •   • Sjögren's - Where Are We in Drug Development?
  •   • Gynecological Issues with Sjögren's 
  •   • Examining Sjögren's - Case by Case 
  •   • Fatigue and Sjögren's  

Member Price: 
$18
Non-Member Price: $30 
(You must be logged in to purchase at the Member Price. Double check that you are receiving the correct price before finalizing your purchase.)
 

 

Sjögren's is often referred to as an invisible disease, one that, while patients may experience severe discomfort, people don’t physically see as debilitating. This can be extremely isolating for patients and also leads to the great misunderstanding about the seriousness of the disease.

The SSF wants to help close the gap between the reality of living with Sjögren’s and the perception that many non-patients may have with our This is Sjögren's! April campaign.

This is Sjogren's

 

 

Clinical Practice Guideline Resource Sheets: 

View the SSF's Rheumatology Clinical Practice Guidelines for Sjögren’s

View the SSF's Clinical Practice Guidelines for Oral Management in Sjögren’s

View the SSF's Clinical Practice Guidelines for Ocular Management in Sjögren’s


 Clinical Practice Guidelines

The Sjögren’s Syndrome Foundation recently launched an initiative to develop Clinical Practice Guidelines in Sjögren’s. Under the leadership of Frederick Vivino, MD, FACR, Chief of Rheumatology, Presbyterian Medical Center, University of Pennsylvania, this project aims to:

  1. Improve the quality of care for Sjögren’s patients by developing Clinical Practice Guidelines for assessment and management of the systemic manifestations, dry eye and dry mouth that occur in Sjögren’s.
  2. Create a document delineating Clinical Practice Guidelines in Sjögren’s for U.S. clinicians.
  3. Obtain broad acceptance of the guidelines by key professional and government organizations.

Three Working Groups have been created to develop Recommendations in their respective fields:
    Rheumatology - Chaired by Steven E. Carsons, MD and Ann Parke, MD
    Oral - Chaired by Troy Daniels, DDS and Michael Brennan, DMD
    Ocular - Chaired by Gary Foulks, MD and Lance Forstot, MD

 

 

Dr. Michael Glick, editor of The Journal of the American Dental Association, talks with Dr. Domenick T. Zero about the SSF clinical practice guidelines (CPG) for oral management of Sjögren's disease featured in April JADA. 

More information about the printed version and the release of these guidelines will be published in the Summer 2016 issue of The Moisture Seekers, SSF's patient newsletter for members. 

SSF CPG- In 2010 the SSF initiated the development of Sjögren’s CPG recommendations for medical practitioners in three categories: rheumatology, oral medicine/dentistry, and eye care. These guidelines will help to standardize patient care by giving physicians a roadmap of how to treat and manage their Sjögren’s patients.

The SSF Sjögren’s CPG initiative is funded fully by the Sjögren’s Syndrome Foundation with no corporate or pharmaceutical industry support. The SSF would like to thank our committee chairmen & members of the oral working group for volunteering their time and expertise to develop these guidelines. We would also like to thank all SSF members and our generous supporters for helping to make the dream of Sjögren’s CPG start to become a reality!