Check out the recent NIH Radio broadcast of Dr. Gabor Illei discussing the signs, symptoms and treatments of Sjögren.


Click Here to see a transcript of the report or download an MP3File of the audio.

The Sjögren’s Syndrome Foundation proudly announced a new 5- year breakthrough goal in the January issue of The Moisture Seekers.

 “To shorten the time to diagnose Sjögren’s by 50% in 5 years!”

Click Here to find out more about the SSF's new Breakthrough Goal!

Read our Press Release below or Click Here for a Copy


  Sjögren's Syndrome Foundation Launches 5-Year Breakthrough Goal

The Sjögren's Syndrome Foundation (SSF) is kicking off 2012 by launching a bold 5-Year Breakthrough Goal:

 “To shorten the time to diagnose Sjögren’s by 50% in 5 years!”

Sjögren’s ("SHOW-grins") is the second most prevalent autoimmune disorder, striking as many as 4 million Americans with an estimated 3 million cases currently undiagnosed.  Early diagnosis and treatment are important for preventing complications with Sjögren’s. Unfortunately, reaching a diagnosis is often difficult and has been found to take an average of over 5 years from the onset of symptoms.

Steven Taylor, CEO of the SSF, says “We cannot sit on the sidelines and let those patients suffer any longer. That is why the SSF is taking action to ensure we do everything we can to increase awareness and help those patients yet to be diagnosed.”

Sjögren’s is a systemic disease in which the body’s immune system mistakenly attacks its own moisture producing glands. The hallmark symptoms are dry eyes and dry mouth, but fatigue, muscle and joint pain are also prominent symptoms. Serious manifestations can occur, such as life-threatening lung involvement, central nervous system complications and disorders of cognitive functioning. Nine out of ten patients are women with an average age of onset in the late 40’s. However, Sjögren’s can occur in all age groups, even in children.

Venus Williams, the tennis star who withdrew from the US open after announcing her Sjögren’s diagnosis, stated that she had suffered with issues from Sj ögren’s for a while without being diagnosed.  “Being diagnosed with Sjögren’s was a huge relief because I finally knew what was happening with my body,” said Williams, illustrating one example of what a correct diagnosis means for Sjögren’s sufferers.

With an aggressive timeline of actions and goals to accomplish ahead, the SSF believes this initiative will change the face of Sjögren’s. “By getting more patients diagnosed, physicians will become more knowledgeable about Sjögren’s and all patients will see a benefit from that,” states Taylor.

To find out more about the 5-Year Breakthrough Goal and how you can help, contact the SSF office at 1-800-475-6473 or visit their website,

 **Arrangements can be made for interviews with local Sjögren’s  patients, healthcare professionals as well as Steven Taylor, CEO, of the Sjögren’s Syndrome Foundation.**

When a person is diagnosed with Sjögren’s syndrome, they often don't know where to begin.

This program will introduce you to three Sjögren’s patients who will share their journey with you. In addition, you will hear from Sjögren’s experts about the causes, treatments and manifestations of Sjögren’s. From there, we hope you will have a place to begin as you develop a partnership and treatment plan with your physician.

Click Here to View the Video 

Medical professionals can be provided a supply of DVDs to give out free-of-charge to their patients. Contact the Sjögren’s Syndrome Foundation office at 800-475-6473 to learn more.

Venus Williams gave an exclusive interview with Good Morning America on September 1, 2011 focusing on her Sjögren's diagnosis.

Click Here to watch a video of the interview with Good Morning America.  



Click Here for a Copy of Our Press Release



Contact Information:
Elizabeth Trocchio or Steven Taylor
Sjögren's Syndrome Foundation
Direct Line: 301-530-4420, press 0
Fax: 301-530-4415


Sjögren’s Syndrome Foundation Supports Venus Williams 

The Sjögren's Syndrome Foundation (SSF) was saddened to hear about Venus Williams’ diagnosis of Sjögren’s syndrome and supports her courageous decision to step forward and share her diagnosis.

Steven Taylor, CEO of the Sjögren’s Syndrome Foundation, states that “on behalf of the 4 million Americans with Sjögren’s, we applaud Venus for publicly stepping forward and shedding light on this serious autoimmune disease. Her courage gives hope to the many who live silently with Sjögren’s because of the lack of awareness around this disease.” 

Although not always life-threatening, Sjögren’s can cause debilitating and life-long complications and have a profound affect on one’s quality of life. At the same time, many Sjögren’s patients fortunately live healthy and productive lives free of major complications.

Sjögren’s syndrome is the second most common autoimmune rheumatic disease and 3x more common than better known related diseases such as Lupus and Multiple Sclerosis.   The disease affects the moisture-producing glands which can cause dry mouth and dry eye.  In addition, fatigue, muscle pain and joint pain are prominent symptoms while serious manifestations can occur with life-threatening lung involvement, central nervous system complications and cognitive functioning.

As Venus stated, she “is thankful to finally have a diagnosis,” and the Sjögren’s Syndrome Foundation is glad that she now has peace in knowing what was causing her symptoms. Unfortunately, many Sjögren’s patients face the same struggle with trying to get a diagnosis that, on average, takes 6.5 years. The Sjögren’s Syndrome Foundation is launching a major new initiative this fall aimed at reducing the time from onset of symptoms to obtaining a diagnosis.

This October, the Sjögren’s Syndrome Foundation will formally announce plans to achieve a new breakthrough goal of “shortening the time from the onset of symptoms to a Sjögren’s diagnosis by 50% over the next 5 years.” The SSF will be introducing national initiatives and programs to help educate the general public and healthcare professionals. Steven Taylor, CEO of the Foundation said, “We hope Venus will consider helping us with this bold initiative, as it will take many to make this goal a reality.”

 **Arrangements can be made for interviews with local Sjögren's patients, healthcare professionals as well as Steven Taylor, CEO, of the Sjögren’s Syndrome Foundation.* 

6707 Democracy Boulevard, Suite 325 ~ Bethesda, MD 20817 ~ 301-530-4420 ~
FAX 301-530-4415 ~ email