The largest registry ever established for Sjögren’s syndrome needs you!

The International Sjögren’s Syndrome Registry is looking for more individuals with Sjögren’s syndrome or with dry eyes and/or dry mouth of unknown cause. The Registry is designed to promote cutting-edge research into Sjögren’s syndrome by collecting data and biospecimens that will be made available to researchers in Sjögren’s syndrome. The lack of data and biospecimens remains the greatest stumbling block for moving discoveries ahead in the field of Sjögren’s.

This project marks the greatest amount of funding ever devoted to a Sjögren’s syndrome research initiative and promises to have far-reaching results. The registry is funded by the National Institutes of Health (NIH), with the National Institute of Dental and Craniofacial Research (NIDCR) as the lead institute and joined by the National Eye Institute (NEI) and the NIH Office of Research on Women’s Health.

The United States arm of the Registry is located in San Francisco, California, and has had participants from 30 of the 50 United States, Mexico, France and India. Patients will get top quality assessment and care. Payment will be available starting August 2007 to partially offset transportation expenses. Please contact the Registry at the University of California San Francisco by calling Danielle at (415) 476-0535 or e-mailing sicca@dentistry.ucsf.edu. Visit http://sicca.ucsf.edu/ for more information.