INTERNET PRIVACY POLICY
Commitment to Privacy
The Sjogrens Syndrome Foundation (“Foundation”) respects the privacy of every individual who uses this website. This Internet Privacy Policy outlines the information the Foundation will collect and how we will use that information. By using our website, you signify that you agree with the terms of our current Internet Privacy Policy as posted in this area of the website. If you do not agree with any term in the Internet Privacy Policy, please do not use this website.
Personally Identifiable Information
When you visit this website, we will not collect any personally identifiable information about you (such as your name, address, telephone number, social security number, billing and shipping information, credit card information or e-mail address) unless you provide it to us voluntarily.
Some of our interactive pages may invite visitors to submit names or e-mail addresses in connection with certain offers that appear on our website, including offers to purchase products online, to become a member of the Foundation , or to receive more information about Sjogren’s Syndrome. If you opt not to provide us with personally identifiable information, no material consequences will result, although you may be unable to participate in these activities via this website and you may be unable to receive certain information sent out electronically by the Foundation. Parties wishing to participate in any transactions through the website are required to provide the Foundation with a variety of necessary and personally identifiable information, such as name, address, phone number, and e-mail address.
Use of Personally Identifiable Information
The Foundation may store and process your personally identifiable information to better understand your needs and how we may improve our services, and we may use your personally identifiable information to contact you. For example, we may send you information or educational materials or other information, we may respond to your comments or requests for information, or we may contact you if needed in the course of processing your transactions.
The Foundation will not sell, rent, loan, trade or lease any of your personally identifiable information collected at our website to any outside organization (including other voluntary health agencies) for the organization's own use without your consent. However, your information may be shared with a third-party mail house for the sole purpose of having the mail house send out newsletters or informational materials on behalf of the Foundation (e.g. distribute our newsletter). We require the mail house to keep this information strictly confidential. If you do not want to be put on our mailing list, you may "opt out" of this service. Finally, nothing in the Privacy Statement shall be deemed to prohibit the Foundation from disclosing your identity if the Foundation is required to do so by law.
Security
We will take reasonable steps to keep all information as secure as possible against unauthorized access and use. All information will be protected by our security measures, which are periodically reviewed.
Non-Personally Identifiable Information Collected Automatically
In some cases, we may collect information about you that is not personally identifiable. Examples of this type of information include the type of Internet browser or computer operating system you are using and the domain name of the website from which you linked to our site or general demographics. In addition, when you view one of our websites or advertisements, we may store some information on your computer. This information will be in the form of a "cookie" or similar file and will help us in many ways. For example, cookies allow us to tailor our website to better match your interests and improve the content of this website. The browser information is not personally identifiable, and the Foundation makes no attempt to link it with the individuals who browse the site. Further, most Internet browsers enable you to erase cookies from your computer hard drive, block all cookies, or receive a warning before a cookie is stored. Please refer to your browser instructions or help screen to learn more about these functions.
Terms of Use
Any information provided in this website does not replace advice from your physician and dentist. While we have worked diligently to provide you with accurate and updated information on this website, we cannot be absolutely certain that everything on this website is free of errors or omissions. Therefore, we will not be liable for any direct, indirect, incidental, consequential or punitive damages arising out of your access to or use of this website. Under no circumstance will the Sjogren’s Syndrome Foundation be liable for any loss or damage caused by your reliance on information obtained through this website. It is your responsibility to evaluate the accuracy, completeness or usefulness of any opinion, advice or other content available through this website.
Links to Other Websites
Our website may contain links to other websites for your convenience in locating related information and services. We are not responsible for and do not maintain these other sites, and have no control over the content, accuracy or opinions expressed in such websites. Furthermore, the Foundation has not investigated, monitored or checked the accuracy or completeness of any such website. Please note that the inclusion of any linked website does not imply approval or endorsement of the linked website by the Foundation.
Accordingly, the Foundation expressly disclaims any responsibility for the content of these other websites, the accuracy of the information on these websites or the quality of products or services provided by the organizations that maintain them. The existence of such links should not be construed as a recommendation, endorsement, approval or verification by the Foundation of any content available on third party sites. the Foundation reserves the right to require written consent for, or request the removal of, any links to our website.
No Liability for Acts of Third Parties
Although the Foundation will use reasonable efforts to safeguard the confidentiality of your personally identifiable information, transmissions made by means of the Internet cannot be made absolutely secure. The Foundation will have no liability for disclosure of information due to errors in transmission or unauthorized acts of third parties. In addition, the Foundation will release specific information about you to comply with any valid legal process such as a search warrant, subpoena, statute or court order. We also will release specific information in special cases, such as if there is an attempted breach of security or a physical threat to you or others.
Contacting Us Regarding Your Personally Identifiable Information
If you have submitted personally identifiable information through this website, or if someone else has submitted your personally identifiable information through this website, and you would like to have that information deleted from our marketing databases, please contact us at the below address. We then will use reasonable efforts to remove your personally identifiable information from our files, unless we are entitled to retain it pursuant to an agreement that you have entered into with the Foundation. If you have any questions about this Internet Privacy Policy, please feel free to contact us using the information below.
Contact the Foundation
Changes to Internet Privacy Policy
Because of changes in Internet technology and practices, this Privacy Policy may change from time to time. Please consult this portion of the Foundation’s website to view important changes to the Internet Privacy Policy as they occur. Unless otherwise provided in an agreement between you and the Foundation, by using the website after the Foundation posts any changes to this Internet Privacy Policy, you agree to accept those changes, whether or not you have reviewed them, and such acceptance shall be deemed legally conclusive. If at any time you choose not to accept the terms of this Internet Privacy Policy, you will not use this website.
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