SAVE THE DATE: 2020 National Patient Conference

April 3 - April 4, 2020
Phoenix, Arizona

This spring we invite you to join with fellow Sjögren’s patients, their families, medical experts, and product exhibitors and attend our 2020 National Patient Conference at the Hyatt Regency Phoenix hotel.

Sjögren’s is not the same for every person diagnosed, which is why educating yourself on the most up-to-date information and treatment options is so important.  Attending the Foundation’s National Patient Conference is one way you can gain information from many different sources while also meeting fellow patients.  

This year’s Conference will include opportunities to:

  • • Learn from national Sjögren’s experts, researchers and SSF staff 
  • • Find new products and receive free samples in our exhibitor hall
  • • Share with your fellow patients 
  • • Browse Sjögren’s resources at the Sjögren’s Foundation Book Table 

We encourage you to take this opportunity to gain an understanding of all the key aspects of Sjögren’s.  This two-day educational experience will give you the tools to take control of your health and learn how to manage and understand your Sjögren’s symptoms and complications.  

Presentation topics will include:

  • Sjögren’s: An Overview
  • Integrative Medicine: A Role for Treatment in Sjögren’s
  • Oral Manifestations of Sjögren’s
  • “Ask the Doctor” Panel
  • International Sjögren’s Research Update
  • Autonomic Nervous System Involvement and POTS
  • How Coaching Can Help You Live Your Best Life
  • Sjögren’s and Dry Eyes: What’s New?
  • Pediatric Sjögren’s
  • Transforming the Future of Sjögren’s
  • And More To Be Announced!

Watch for your Conference brochure coming in January or visit www.sjogrens.org to see updated conference information.

Saturday, March 14, 2020
Orlando Area Walk for Sjögren's

Join fellow patients, family & friends as we gather to raise awareness and crucial funds to support Sjögren’s research and education. Click here to learn more

 

 

One Day Sjögren's Patient Conference
Saturday, November 2, 2019
Hilton Garden Inn Cleveland-Downtown

Join the Sjögren's Syndrome Foundation (SSF) on Saturday, November 2, 2019 in Cleveland, OH for a one-day Patient Conference to gain valuable insight into Sjögren's. The conference is designed for Sjögren's patients, their caregivers and their family members to learn how to best take control of their disease while managing their overall health and day-to-day living. Sjögren's patients and attendees will learn from leading healthcare professionals, thought leaders and Sjögren's experts – physicians, dentists, eye care providers, and researchers - as well as the SSF CEO, Steven Taylor. Registration will begin at 9am and the presentations will begin at 10am. A plated lunch will also be provided as part of the event.

Featured topics will include: (Speakers to be announced)

  • • The Complexities of Sjögren's: An Overivew;
  • • Oral Complications of Sjögren's;
  • • Ocular Complications of Sjögren's;
  • • Sjögren's & Fatigue;
  • • Managing & Overcoming Chronic Pain & Illness;
  • • The State of Sjögren's: Transforming the Future (update on clinical research and other projects & initiativies)

Click here to register online. If you are interested in sponsoring the conference, or would like to learn more about becoming a sponsor, please contact Ben Basloe at the SSF at (301) 530-4420, ext. 207.

Saturday, February 29, 2020
Phoenix Area Walk for Sjögren's

Join fellow patients, family & friends as we gather to raise awareness and crucial funds to support Sjögren’s research and education. Click here to learn more.

 

Team Sjogren's Logo

Team Sjögren's Philadelphia Half Marathon & 7.6K!

September 15, 2019

We’re looking for runners or walkers to join our Team Sjögren’s Training Program for the Rock ‘n’ Roll series Philadelphia Half Marathon and 7.6K race.  Follow our program and we will prepare you to WALK or RUN either the Half Marathon (13.1 miles) or their inaugural 7.6K (4.72 miles) race on Sunday, September 15, 2019 in Philadelphia! 

The SSF has a limited number of spots for this epic fall event and we hope you’ll be one of them! By taking part, you will get to enjoy the Rock ‘n’ Roll Marathon Series oldest event in historic Philadelphia as we participate alongside 20,000 other walkers/runners from all over the world!

Both walker friendly courses take you on a city tour through beautiful Philadelphia. Those individuals completing the Half Marathon will traverse 13.1 miles and those who decided to run or walk the 7.6K will cover 4.72 miles and be one of the first to rock an all new distance in this inaugural race. Whichever you choose, you will be cheered on by bands, cheerleaders and supportive spectators throughout the route!  

As a Team Sjögren’s member, you will receive:

  • • World-class training from our Team Trainer
  • • Leadership and mentorship from past runners and SSF staff
  • • Hotel room accommodations in Philadelphia
  • • Airfare reimbursement
  • • Opportunity to join a team of those wanting to make a difference
  • • And much much more

The best part, is that even if you have never ran or walked such a distance, the staff and our team trainer will help guide you through the entire process and ensure you are ready to participate in September!   Our team is always full of walkers and runners – so don’t fret if you aren’t a runner – Team Sjögren’s was designed for you! Our plan takes people from the couch to the course!

If you want to receive information about training and fundraising requirements, contact Steven Taylor at staylor@sjogrens.org!If you don't feel you can walk or run in this event, do what many other patients have done and recruit your husband, wife, sister, brother, daughter, son or friend to walk or run in your honor. 

We Run in Honor of the 4 Million Americans with Sjögren’s... We Are Team Sjögren’s!!!