SAVE THE DATE: 2019 National Patient Conference

April 5 - April 6, 2019
Boston Area

This spring we invite you to join with fellow Sjögren’s patients, their families, medical experts, and product exhibitors and attend our 2019 National Patient Conference.

Sjögren’s is not the same for every person diagnosed, which is why educating yourself on the most up-to-date information and treatment options is so important.  Attending the SSF National Patient Conference is one way you can gain information from many different sources while also meeting fellow patients.  

This year’s Conference will include opportunities to:

  • • Learn from national Sjögren’s experts, researchers and SSF staff 
  • • Find new products and receive free samples in our exhibitor hall
  • • Share with your fellow patients 
  • • Browse Sjögren’s resources at the SSF Book Table 

We encourage you to take this opportunity to gain an understanding of all the key aspects of Sjögren’s.  This two-day educational experience will give you the tools to take control of your health and learn how to manage and understand your Sjögren’s symptoms and complications.  

Presentation topics will include:

  • • Sjögren’s Overview
  • • Memory Problems and Sjögren’s: What you can do to help
  • • Oral and Ocular Manifestations of Sjögren’s
  • • Sjögren’s Clinical Trials Update
  • • What Do the Numbers Mean? Understanding Blood Changes and Lab Results 
  • • Living with Sjögren’s: A Patient Panel
  • • How Sjögren’s Can Impact the Central Nervous System
  • • Nutrition, Wellness and Autoimmune Disease
  • • And More To Be Announced!

More information will be announced shortly and watch for your Conference brochure coming in January!

Team Sjögren's New Orleans!

Team Sjögren's is headed to the Big Easy! It is sure to be a good time in the Crescent City as we join 20,000 participants on a festive course that makes it’s way through historic homes, iconic landmarks, joyful musicians and ends with an amazing post-race party in City Park!  And one of the best parts is that the course is flat and fast!

Our successful training plan has taken hundreds of Team Sjögren's members from the couch to the starting line over the last 9 years! As a Team Sjögren's member, you will receive world-class training along with mentorship from past runners and Foundation staff. Our team trainer will be there to help guide you through the entire training process and ensure you’re ready to go the distance and complete the 6.2 or 13.1 miles! Our team is always full of both walkers and runners so don't fret if you aren't a runner, with training and preparation you can walk the entire course! 

The efforts of our Team Sjögren's members help us raise crucial awareness as well as funds for Sjögren's research and education. If you don't feel you can walk or run in this event, do what many other patients have done and recruit your husband, wife, sister, brother, daughter, son or friend to walk or run in your honor.

If you want to receive information about training and fundraising requirements, contact Steven Taylor at staylor@sjogrens.org!If you don't feel you can walk or run in this event, do what many other patients have done and recruit your husband, wife, sister, brother, daughter, son or friend to walk or run in your honor. 

We Run in Honor of the 4 Million Americans with Sjögren’s... We Are Team Sjögren’s!!!

While World Sjögren's Day commemorates the birthday of Henrik Sjögren, a Swedish ophthalmologist who first identified the disease in 1933, it is more importantly a way to help raise awareness for Sjögren's. It is meant to put a face on the millions of people who live with this disease or suffer from symptoms and have yet to be diagnosed. It gives everyone touched by Sjögren's a vehicle to reach out and educate those close to them - family, friends, co-workers, neighbors, etc. - about the disease. It is the ideal opportunity for you to have your voice heard and to spread awareness about this life-altering disease.

Leading up to World Sjögren's Day and especially on the day itself, we encourage you to use this opportunity to let your voice heard and talk about Sjögren’s with the people in your life. By sharing your story and educating others, you are helping to form the message that Sjögren's is a serious disease that deserves to be recognized. You may also be helping someone who is looking for answers to their problems.

How Can You Get Involved:

 

Team Sjögren's Goes TURKEY! 

As you start making plans for Thanksgiving, we hope you will consider participating in your local community Turkey Trot as a member of Team Sjögren's! 

The SSF is excited to offer Team Sjögren’s Goes Turkey Trot Kits and Team Sjögren’s Goes Turkey T-Shirts. In addition to starting your day of giving thanks by walking or running with others in your area, you are also helping to increase awareness of Sjögren’s and much needed funds for Sjögren's research.

Consider making this a team affair by asking friends and family to join you at the Turkey Trot!

     Your Kit Includes:

     • Team Sjögren’s Turkey T-shirt
     • SSF Hat 
     • SSF Reusable Shopping Bag 
     • Sjögren’s Awareness Bracelet 
     • SSF Water Drop Pin
     • Certificate of Participation 
     •  Sjögren’s Brochure
     • Information about how to find a Turkey Trot near you!

Click here to order your Turkey Trot Kit or T-shirt online or call our office at 1-800-475-6743!