SSF 5-Year Breakthrough Goal Update:

The Average Sjögren’s Diagnosis Time Decreases to 3 Years!

It is hard to believe that in 2012, the Sjögren’s Syndrome Foundation (SSF) announced our ambitious 5-Year Breakthrough Goal to transform the future of Sjögren’s for all patients. Our Goal: “To shorten the time to diagnose Sjögren’s by 50% in 5 years!”

When our Goal was launched in January 2012, research showed the average diagnosis time was nearly 6 years. The SSF Board of Directors knew that we had to take action to help those patients searching for answers and set our Goal to decrease the average time to 2.5 years for those diagnosed in 2017. As you know, early diagnosis and treatment are critical for preventing serious complications and no patient should suffer by waiting for a diagnosis!

Following an aggressive timeline with a series of consecutive goals and actions, every year the SSF works with an outside marketing research company to conduct an annual survey of newly diagnosed patients. The SSF is proud to report that our 2016 survey revealed that for those patients diagnosed in 2015, it took an average of 3 years to receive an accurate diagnosis. 

(Article from The Moisture Seekers January 2017, SSF Members can use this link to log-in and read the full article and Issue) By Steven Taylor, SSF CEO, and Elizabeth Trocchio, SSF Director of Marketing