Steven Taylor to Lead 2019 National Health Council Board of Directors

Washington, DC — Dec. 11, 2018 — At its annual membership meeting today, the National Health Council (NHC) elected its officers and new members of the Board of Directors for 2019. Steven Taylor, Chief Executive Officer of the Sjögren’s Syndrome Foundation will be the Chairperson of the NHC Board of Directors for 2019. Other members of the 2019 Executive Committee will be: Chairperson-Elect Ann Palmer, President & Chief Executive Officer, Arthritis Foundation; Vice Chairperson, Gary Reedy, Chief Executive Officer, American Cancer Society; Secretary Matt Eyles, President & Chief Executive Officer, America’s Health Insurance Plans; Treasurer Cassandra McCullough, Chief Executive Officer, Association of Black Cardiologists; and Immediate Past Chairperson Robert Gebbia, Chief Executive Officer, American Foundation for Suicide Prevention.

“Steve is a passionate leader in the patient advocacy community and shaped the development of our 2019-2021 Strategic Plan,” said Marc Boutin, JD, Chief Executive Officer of the National Health Council. Click here to read more.
National Health Council

The Sjögren’s Syndrome Foundation (SSF) has revamped its research program and is now accepting applications for two distinct grants:

  •    • The SSF Pilot Research Award: $25,000
  •    • The SSF High Impact Research Award: $75,000

SSF research grants are open to basic and clinical scientists holding an advanced degree (MD, PhD and similar) at any US university or research institution. Both junior and senior investigators are encouraged to apply.

The application deadline for both awards is February 1, 2019

Additional details are available online and questions can be directed to research@sjogrens.org.

CHICAGO—“Sjögren’s has proven to be one of our most difficult to diagnose autoimmune rheumatic diseases,” began Frederick B. Vivino, MD, MS, director of the Penn Sjögren’s Syndrome Center, chief of rheumatology at Penn Presbyterian Medical Center and professor of clinical medicine at the Perelman School of Medicine at the University of Pennsylvania, as he opened the session on Sjögren’s syndrome at the 2018 ACR/ARHP Annual Meeting on Oct. 21. Many rheumatologists gathered in the large auditorium, with some forced to sit on the floor to learn about these issues. Dr. Vivino noted that although there is a defined classification for Sjögren’s syndrome, clinicians still face practical challenges in making an accurate diagnosis. In addition, gaps and challenges exist in treating local and systemic manifestations of Sjögren’s syndrom. Click here to read more.

 

More information about the different Sjögren’s programs from this year’s meeting will be published in the SSF member newsletter, “The Moisture Seekers.” Click here to learn more about becoming an SSF member. 

SAVE THE DATE: 2019 National Patient Conference

April 5 - April 6, 2019
Boston Area

This spring we invite you to join with fellow Sjögren’s patients, their families, medical experts, and product exhibitors and attend our 2019 National Patient Conference.

Sjögren’s is not the same for every person diagnosed, which is why educating yourself on the most up-to-date information and treatment options is so important.  Attending the SSF National Patient Conference is one way you can gain information from many different sources while also meeting fellow patients.  

This year’s Conference will include opportunities to:

  • • Learn from national Sjögren’s experts, researchers and SSF staff 
  • • Find new products and receive free samples in our exhibitor hall
  • • Share with your fellow patients 
  • • Browse Sjögren’s resources at the SSF Book Table 

We encourage you to take this opportunity to gain an understanding of all the key aspects of Sjögren’s.  This two-day educational experience will give you the tools to take control of your health and learn how to manage and understand your Sjögren’s symptoms and complications.  

Presentation topics will include:

  • • Sjögren’s Overview
  • • Memory Problems and Sjögren’s: What you can do to help
  • • Oral and Ocular Manifestations of Sjögren’s
  • • Sjögren’s Clinical Trials Update
  • • What Do the Numbers Mean? Understanding Blood Changes and Lab Results 
  • • Living with Sjögren’s: A Patient Panel
  • • How Sjögren’s Can Impact the Central Nervous System
  • • Nutrition, Wellness and Autoimmune Disease
  • • And More To Be Announced!

More information will be announced shortly and watch for your Conference brochure coming in January!

Team Sjögren's New Orleans!

Team Sjögren's is headed to the Big Easy! It is sure to be a good time in the Crescent City as we join 20,000 participants on a festive course that makes it’s way through historic homes, iconic landmarks, joyful musicians and ends with an amazing post-race party in City Park!  And one of the best parts is that the course is flat and fast!

Our successful training plan has taken hundreds of Team Sjögren's members from the couch to the starting line over the last 9 years! As a Team Sjögren's member, you will receive world-class training along with mentorship from past runners and Foundation staff. Our team trainer will be there to help guide you through the entire training process and ensure you’re ready to go the distance and complete the 6.2 or 13.1 miles! Our team is always full of both walkers and runners so don't fret if you aren't a runner, with training and preparation you can walk the entire course! 

The efforts of our Team Sjögren's members help us raise crucial awareness as well as funds for Sjögren's research and education. If you don't feel you can walk or run in this event, do what many other patients have done and recruit your husband, wife, sister, brother, daughter, son or friend to walk or run in your honor.

If you want to receive information about training and fundraising requirements, contact Steven Taylor at staylor@sjogrens.org!If you don't feel you can walk or run in this event, do what many other patients have done and recruit your husband, wife, sister, brother, daughter, son or friend to walk or run in your honor. 

We Run in Honor of the 4 Million Americans with Sjögren’s... We Are Team Sjögren’s!!!