"More than 4mm Americans are living with Sjögren's, a systemic autoimmune disease that affects the entire body. Nine out of ten patients are women. Let me repeat this: 9/10 patients are women. Kathy Hammitt, Chair of the TFOS Public Awareness & Education Subcommittee, is Vice President of Medical & Scientific Affairs at Sjögren's Syndrome Foundation in Washington, DC. A patient herself, she is a strong advocate for change, overseeing SSF’s key research and medical initiatives to increase our knowledge about Sjögren’s, improve the exchange of ideas to accelerate research, and set the stage for better treatment and management of Sjögren’s through awareness and fund raising. Her battle has just begun. Read our interview here."

-Dominica Drazal

Director, TFOS Global Ambassador Program

New classification criteria for Sjögren’s were published in the fall of 2016! Classification criteria are for use in clinical trials to ensure that the patient population participating in a drug trial definitely has a disease. As a result, classification criteria are much stricter than diagnostic criteria used for patients in the clinician’s office, and many patients might not fit classification criteria but still be diagnosed as having Sjögren’s.

The latest set of classification criteria have been endorsed by both the American College of Rheumatology (ACR) and the European League Against Rheumatism (EULAR) and were published simultaneously in the ACR journal, Arthritis and Rheumatology, and the EULAR journal, Annals of Rheumatic Disease. This international effort was led by Caroline Shiboski, DDS, MPH, PhD and Stephen Shiboski, PhD, of the University of California San Francisco with other international leaders in Sjögren’s and in conjunction with the International Sjögren’s Syndrome Criteria Working Group. Formerly, two sets of classification were in use: the 2002 American European Consensus Group classification criteria and the 2012 ACR classification criteria.

The Sjögren’s Syndrome Foundation (SSF) brought the international community together by hosting meetings so that Sjögren’s leaders in the U.S. and Europe could agree on one set of classification criteria, paving the way for a clear path to designing and pursuing clinical trials in Sjögren’s. The SSF was honored to be part of this key initiative that will make a tremendous difference for patients and physicians and encourage companies to pursue the development of potential therapies for Sjögren’s.

2016 American College of Rheumatology/European League Against Rheumatism Classification Criteria for Primary Sjögren's Syndrome: A Consensus and Data-Driven Methodology Involving Three International Patient Cohorts.
Click here for Abstract 

Did you miss our 2016 National Patient Conference?  

The most popular talks from the 2016 SSF Conference are available for purchase as audio CDs. Each talk is 30-40 minutes long and comes with the handouts used by the presenter so you can follow along with the talk.

Presentation topics include:

  •   • Sjögren's Overview 
  •   • Oral Manifestations of Sjögren's 
  •   • Dry Skin and Dermatological Issues 
  •   • An Inside Look at Sjögren's & Gluten-Free Diets 
  •   • Ocular Manifestations of Sjögren's 
  •   • Sjögren's - Where Are We in Drug Development?
  •   • Gynecological Issues with Sjögren's 
  •   • Examining Sjögren's - Case by Case 
  •   • Fatigue and Sjögren's  

Member Price: 
Non-Member Price: $30 
(You must be logged in to purchase at the Member Price. Double check that you are receiving the correct price before finalizing your purchase.)


The SSF is excited to announce the publication of the first U.S. Rheumatology Clinical Practice Guidelines for Sjögren's.

Published in Arthritis Care and Research, these rheumatology guidelines were designed to improve quality and consistency of care for Sjögren's patients by offering clinicians recommendations for disease management. Among the recommendations, the guidelines address issues such as the use of biologic agents, management of fatigue, and inflammatory musculoskeletal pain in systemic Sjögren's. Click here to read more.

View Guidelines Published in the Rheumatic Diseases Clinics of North America

Clinical Practice Guideline Resource Sheets: 

View the SSF's Rheumatology Clinical Practice Guidelines for Sjögren’s

View the SSF's Clinical Practice Guidelines for Oral Management in Sjögren’s

View the SSF's Clinical Practice Guidelines for Ocular Management in Sjögren’s

 Clinical Practice Guidelines

The Sjögren’s Syndrome Foundation recently launched an initiative to develop Clinical Practice Guidelines in Sjögren’s. Under the leadership of Frederick Vivino, MD, FACR, Chief of Rheumatology, Presbyterian Medical Center, University of Pennsylvania, this project aims to:

  1. Improve the quality of care for Sjögren’s patients by developing Clinical Practice Guidelines for assessment and management of the systemic manifestations, dry eye and dry mouth that occur in Sjögren’s.
  2. Create a document delineating Clinical Practice Guidelines in Sjögren’s for U.S. clinicians.
  3. Obtain broad acceptance of the guidelines by key professional and government organizations.

Three Working Groups have been created to develop Recommendations in their respective fields:
    Rheumatology - Chaired by Steven E. Carsons, MD and Ann Parke, MD
    Oral - Chaired by Troy Daniels, DDS and Michael Brennan, DMD
    Ocular - Chaired by Gary Foulks, MD and Lance Forstot, MD