Click here for the Dry Eye reDefined: TFOS DEWS II Report

 

 

Statement in Support of the Prescription Drug User Fee Act (PDUFA)

3/22/2017

The Sjögren's Syndrome Foundation strongly urges the reauthorization of the Prescription Drug User Fee Act (PDUFA) to ensure timely approval of new and safe medications by the U.S. Food and Drug Administration (FDA). Millions of patients, including those who suffer from the second most common autoimmune rheumatic disease, Sjögren's, will suffer needlessly if PDUFA is not reauthorized.

Because of the increased number and complexity of drugs entering regulatory review in this modern era, user fees are critical to enable the FDA to keep pace with the approval process. Before the initial passage of PDUFA in 1992, most medicines were approved outside the U.S. due to the lengthy time it took to get drug reviews through the FDA. Following PDUFA, drug approval time was reduced in half and more than 1500 drugs have been authorized by the FDA. PDUFA encourages scientific innovation and makes it possible for our country to bring new treatments to market for the many patients who desperately need them.

Click here to download the statement

 

April is Sjögren’s Awareness Month

April is Sjögren’s Awareness Month and we hope you will join us in educating the public about this complex disease and how it affects those who are living with it!

Sjögren’s Awareness Month was first established in 1998 when Congresswoman Louise Slaughter, from New York, read it into the Congressional Record and the Foundation works to keep the spirit of national awareness alive this April on the 19th anniversary. 

***More information about Sjögren’s Awareness Month 2017 will be announced soon. #ThisIsSjögrens #SjögrensAwarenessMonth 

 

This April is Sjögren’s Awareness Month. Each day of the month, the Sjögren’s Syndrome Foundation (SSF), will be using one or more of its social media channels to educate people about Sjögren’s, an autoimmune disorder affecting more than 4 million Americans, with an estimated 2.5 million patients currently undiagnosed.

Please consider further supporting our efforts by using your social media channels to follow, like, share, and comment on some of the SSF’s selected posts and using the #ThisIsSjögrens hashtag! 

• Twitter
• Facebook
• LinkedIn

With your added support, you can help shine a light on Sjögren’s to ensure greater awareness and understanding of this disease and help patients get an early diagnosis and proper treatment that may prevent serious complications and greatly improve their quality of life. 

Thank you, 

Steven Taylor
Chief Executive Officer

 

2017 National Patient Conference

March 31 – April 1
Crowne Plaza Philadelphia/Cherry Hill
2349 West Marlton Pike Cherry Hill, New Jersey

Presentation topics will include:

• Sjögren’s Overview
• Pulmonary Issues and Sjögren’s
• Oral Manifestations of Sjögren’s
• Pediatric Sjögren’s
• Ocular Manifestations of Sjögren’s
• Men with Sjögren’s
• Social Security Disability for Sjögren’s
• Neurological Complications and Sjögren’s
 Are you Collecting Autoimmune Diseases?

Click here to view the 2017 NPC brochure

We hope to see you at our upcoming Conference!

Thank you to our Premier Sponsor: