With an estimated 4 million Americans suffering from Sjögren’s, both men and women of different ages and ethnicities, it is one of the most prevalent but lesser known autoimmune diseases. Sjögren’s is also not a “cookie cutter” disease and affects patients differently. This can lead to a misunderstanding about the seriousness of the disease and be extremely isolating for those living with it. 

April is Sjögren's Awareness Month and using our 2018 campaign, “30 Faces for Sjögren’s Awareness Month,” we hope to help others visualize the vast impact of the disease.  Every day in April, we will be using one or more of our social media channels to educate people about Sjögren’s.  Every post is an opportunity to start a conversation about living with Sjögren’s and how it affects you. The more others understand, the more support you can find. And know that we at the Sjögren’s Syndrome Foundation are here for you! 

Get Involved!

On behalf of the millions of patients living with Sjögren's, thank you for your support of the SSF and our mission. Together we are transforming the future of Sjögren's for all patients!

 

this is sjogrens - 2018

 

The SSF strives to foster research that will have the greatest potential impact on Sjögren’s patients, ensuring new therapeutics are developed and a cure found.


Today, we are sharing the study Oral Health Related Quality of Life (OHRQoL) in Sjögren’s Patients under Principal Investigator Dr. Athena Papas at Tufts University School of Dental Medicine. The purpose of this study is to determine the oral health-related quality of life in patients with Sjögren’s, either primary or secondary, using a questionnaire. This study will create a better understanding of how Sjögren’s patients are affected and aims to give insight into how these patients can best be managed in a dental setting.

Click here to participate and learn more about this voluntary and anonymous study.

 

Calling all researchers! The SSF encourages you to apply for a grant in Sjögren’s. 

Application Deadline: February 1, 2018


Grant Guidelines 
 

The application receipt deadline is February 1, 2018. The grant funding period is July 1 through June 30 

Grants will be awarded in amounts ranging between $15,000 and $50,000 a year for two years, depending on satisfactory progress. A human study that reviewers deem to be the most innovative project will be eligible for a $50,000 grant. All investigators will submit a budget for $35,000 and revise the budget once an award offer is accepted.

SSF research grants are open to basic and clinical scientists holding an advanced degree (MD, DDS, DMD, or PhD) at any U.S. university or research institution. Both junior and senior investigators may apply. For physicians, advanced clinical training in a specialty related to Sjögren’s, such as rheumatology or ophthalmology, is desirable.

The application receipt deadline is February 1, 2018. The grant funding period is July 1 through June 30.


Click here to learn how to apply for an SSF research grant

 

The SSF office has recently moved! Please note the Foundation's new address is:

10701 Parkridge Blvd., Suite 170
Reston, VA 20191

“Every day research is being conducted to unveil new medications, therapies and diagnostic tools for Sjögren’s and its symptoms.  By participating in a clinical trial, you will be helping to potentially uncover breakthroughs that will help Sjögren’s patients worldwide.”  Steven Taylor, SSF CEO

Thank you for your interest in learning more about Sjögren’s clinical trials. We encourage you to learn more about what is involved in a clinical trial and ask as many questions as you want before entering one.

Clinical trials are designed to add to medical knowledge and most importantly, the results of these trials can make a difference in the care and treatment of Sjögren’s patients.

The SSF is fully committed to the development of new therapeutics that will treat the entire disease, not just one symptom. The following links will provide you additional knowledge about clinical trials, what's involved and what to expect:

               • All About Clinical Trials and Sjögren’s
               • What to know about Clinical Trials and Sjögren’s
               • Understanding Primary vs. Secondary Sjögren’s

Thank you for your interest in learning more and we encourage you to visit our current listing of clinical trial locations:  

Click here to learn more about  current Sjögren’s clinical trials!