World Sjögren's Day
World Sjögren's Day is meant to put a face on the millions of people who live with this disease or suffer from symptoms and have yet to be diagnosed. It gives everyone touched by Sjögren's a vehicle to reach out and educate those close to them - family, friends, co-workers, neighbors, etc. - about the disease. It is the ideal opportunity for you to have your voice heard and to spread awareness about this life-altering disease.
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World Sjögren’s Day, July 23, is the ideal opportunity for you to have your voice heard! In honor of World Sjögren’s Day, we encourage you to talk about Sjögren’s with the people in your life. By sharing your story and educating others, you are helping spread the message that Sjögren's is a serious disease that deserves to be recognized. You may also be helping someone who is looking for answers to their own questions.
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Lunda Wells, Tight End Coach for the Dallas Cowboys, uses his voice to support his wife Tiffany and all patients on World Sjögren’s Day! World Sjögren’s Day, July 23, was established to commemorate the birthday of Dr. Henrik Sjögren, the Swedish ophthalmologist who discovered Sjögren’s. It is meant to put a face on the millions of people living with Sjögren's or suffering from symptoms and yet to be diagnosed. Whether you are a patient, family member or friend, World Sjögren’s Day is the ideal opportunity to use your voice and share that Sjögren's is serious, systemic, and prevalent!
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Tiffany Wells, Sjögren’s patient, uses her voice to support everyone living this disease and help educate others that it is serious, systemic, and prevalent. Listen to her story about being a loud and vocal advocate today and every day! If you are living with Sjögren’s, you are not alone. We encourage you to join with Tiffany and use your voice to share your story.
COVID-19 Vaccine and Sjögren's Webinar featuring Cassandra Calabrese, DO
The Sjögren’s Foundation understands that many patients have questions about the safety and effectiveness of the COVID-19 vaccine.
With this in mind, the Foundation recently hosted a free member Town Hall webinar featuring Cassandra Calabrese, DO, and member of the Foundation’s COVID-19 Vaccination Committee. This recording includes current information related to COVID-19 and vaccinations as well as a Question & Answer portion in which Dr. Calabrese answers patient-submitted questions.
Click Here to Watch WebinarExploring Sjögren's - Season 2
Exploring Sjögren’s is the Foundation’s YouTube video series that gives and in-depth look into the disease and the daily lives of our patients. Season one features six episodes that discuss Sjögren’s and the work being done to help conquer the complexities of Sjögren’s.
Exploring Sjögren’s season two dives further into the disease with episodes on: fatigue, disability and pediatric Sjögren’s.
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Fatigue is often described as one of the most debilitating symptoms of Sjögren’s. In a recent Foundation survey, 94% of patients experienced severe fatigue. This episode looks at this complex symptom, how it can manifest in patients, and what coping techniques/treatments are available.
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The Foundation understands how arduous applying for Social Security Disability due to Sjögren’s can be. This episode of Exploring Sjögren’s features a disability attorney and a patient who discuss their experiences with filing for benefits.
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Sjögren’s has traditionally been thought to most commonly occur in older populations. However, it is likely more common in children than is currently appreciated. A main difference between adults and children with Sjögren’s are the major clinical representing features. Unlike adults, the most common presentation in children is parotid enlargement. This episode, Pediatric Sjögren’s Part 1, discusses these differences and diagnosing childhood Sjögren’s.
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Pediatric Sjögren’s can create unique challenges for a family. Part 2 of Pediatric Sjögren’s, sits down with parents, a pediatric rheumatologist and a teenage with Sjögren’s to learn more about childhood Sjögren’s and creating a brighter future for all patients.
Exploring Sjögren's - Season One
Exploring Sjögren’s is our YouTube video series that explores Sjögren’s and the daily lives of our patients. Season One has six episodes that discuss Sjögren’s and the work being done to help conquer the complexities of Sjögren’s.
Special thanks Brad Lemack from Lemack & Company, our Executive Producer, and all the physicians, researchers and patients who took part in Season One of this important project.
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The episodes featured start to explore the daily lives of Sjögren’s patients while also explaining Sjögren’s and what is happening in treatment and research for the disease.
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A proper diagnosis of Sjögren’s gives patients relief that their symptoms are caused by something. Then comes the challenge of learning to live with this chronic disease, Sjögren’s, and all of its complications. This episode features current patients and the impact Sjögren’s has on their lives.
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With 90% of Sjögren’s patients being women, a common question is how the disease can affect pregnancy. While Sjögren’s affects everyone differently, it is important to understand how the complexities of the disease can intertwine with the challenges of being pregnant.
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The complexity of Sjögren’s allow many opportunities to study the disease. With hundreds of researchers around the world focusing on Sjögren’s, this episode looks at the large array of work being done to help understand the disease.
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Living with Sjögren’s can be a challenge every day. Most patients have to adjust to a “new normal” of functioning while battling this autoimmune disease. This episode covers patients and the tools they have found for adjusting and living with Sjögren’s.
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In a recent survey, over 96% of patients want a treatment for Sjögren’s that will cover the entire disease. This episode will explore the Sjögren’s Foundation’s Clinical Trial Consortium which brings together leading Sjögren’s healthcare professionals and pharmaceutical companies as they develop new therapeutic treatments for Sjögren’s.
Sjögren's: A Place To Begin
This program will introduce you to three Sjögren’s patients who will share their journey with you. In addition, you will hear from Sjögren’s experts about the causes, treatments and manifestations of Sjögren’s. From there, we hope you will have a place to begin as you develop a partnership and treatment plan with your physician