Sjögren's & Interstitial Cystitis, Lisa
I had terrible bladder pain starting in 2019. I was fortunate to be referred to an excellent uro-gynecologist who understood my disease and had a good action plan to get ahead of it. It took three years of meds and injections combined with pelvic floor therapy. I’ve gone from injections every week, to every two weeks, then ultimately to every 6 months for injections. It does flare with stress so there are intermittent injections as needed. My advice is always ask your doctors how any new ailment might be related to your Sjögren’s and if you are not satisfied with what you hear, ask your support group or the foundation and consider finding a doctor familiar with our disease. They are out there.
Click here to read Lisa discussing Sjögren's and Interstitial Cystitis
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Each Patient-to-Patient story discusses a specific symptom or aspect of living with Sjögren’s. They are a unique look into how individuals manage their disease.
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