Support Groups offer a place for people living with Sjögren’s to connect, share and learn about managing their daily lives with the disease. Led by volunteer patients across the country, these groups are a way to connect Sjögren’s patients within their communities or states and allow them to learn from one another by sharing their experiences, tips, and suggestions.
These groups provide:
- Guided topic discussions related to Sjögren’s
- Patient-to-patient sharing of experiences
- An opportunity to connect and exchange helpful coping techniques
- Knowledge of helpful resources
To find out if there is a support group in your area, check the listing below.
**Corporate or organizational requests to Support Group Leaders for the purpose of product sales, marketing, or of member solicitation (e.g., participation in opinion polls or research studies) are strictly prohibited. Any such requests must be approved through the Sjögren’s Foundation by contacting info [at] sjogrens [dot] org (info[at]sjogrens[dot]org).
Arizona
Support Group Leader: Yolanda
Contact Information: azsjogrensgroup [at] gmail [dot] com (azsjogrensgroup[at]gmail[dot]com)
Meeting Schedule: *This is a virtual meeting.*
Meetings are scheduled 4 times per year, schedule varies. Members living in Arizona, please watch your email for meeting information and instructions on how to RSVP.
We are currently seeking volunteer Support Group Leaders for Northern California, San Diego and Central Coast. Interested in learning more? Please review our support group information sheet here and email info [at] sjogrens [dot] org (info[at]sjogrens[dot]org) if you feel this volunteer opportunity is a good match for you!
Greater Los Angeles/Southland
Support Group Leader: Susan B.
Contact Information: LAsjogrensgroup [at] yahoo [dot] com (LAsjogrensgroup[at]yahoo[dot]com)
Meeting Schedule: *This is a virtual meeting.*
Meetings are scheduled 4 times per year, generally held on the 3rd Saturday every three months at 10:00 am - 12:00 pm PST. Members living in the Greater Los Angeles / Southland area, please watch your email for meeting information and instructions on how to RSVP
San Francisco Bay Area
Support Group Co-Leaders: Meghan K. and Lauren Miranda Gilbert
Contact Information: megkhalsa [at] yahoo [dot] com (megkhalsa[at]yahoo[dot]com) // laurenmiranda [at] yahoo [dot] com (laurenmiranda[at]yahoo[dot]com)
Meeting Schedule: *This is a virtual meeting.*
Meetings are scheduled 4 times per year, generally held on the 1st Saturday every three months at 10:00 am - 12:00 pm PST. Members living in the San Francisco Bay area, please watch your email for meeting information and instructions on how to RSVP.
We are currently seeking a volunteer Support Group Leader for Denver. Interested in learning more? Please review our support group information sheet here and email info [at] sjogrens [dot] org (info[at]sjogrens[dot]org) if you feel this volunteer opportunity is a good match for you!
Ft. Collins/Loveland
Support Group Leader: Mollee Reiber
Contact Information: preschoolmollee [at] yahoo [dot] com (preschoolmollee[at]yahoo[dot]com) or (970) 302-1039
Meeting Schedule: *This is an in-person meeting.*
Meetings are scheduled 4 times per year, generally held on the 2nd Saturday every three months at 9:00 am - 12:00 pm MST. Members living in the Ft. Collins / Loveland area, please watch your email for meeting information and instructions on how to RSVP.
Hartford/Farmington
Support Group Leader: MaryBeth
Contact Information: (860) 569-6933
Meeting Schedule: *This is a virtual meeting.*
Meetings are scheduled 4 times per year, schedule varies. Members living in Connecticut, please watch your email for meeting information and instructions on how to RSVP.
We are currently seeking volunteer Support Group Leaders for Jacksonville and Southern Florida (Fort Lauderdale/Miami). Interested in learning more? Please review our support group information sheet here and email info [at] sjogrens [dot] org (info[at]sjogrens[dot]org) if you feel this volunteer opportunity is a good match for you!
Lady Lake
Support Group Leader: Karen Marshall
Contact Information: kato1420 [at] gmail [dot] com (kato1420[at]gmail[dot]com) or (231) 972-3110
Meeting Schedule: *This is an in-person meeting.*
Meetings are scheduled monthly, generally held on the 4th Friday of each month at 10:00 - 11:30 am EST. No meetings are held in June, July, and August. Members living in the Lady Lake / Villages area, please watch your email for meeting information and instructions on how to RSVP.
Orlando Area
Support Group Leaders: Linda Neall
Contact Information: lindaneall12 [at] gmail [dot] com (lindaneall12[at]gmail[dot]com) or (407) 446-3846
Meeting Schedule: *This is an in-person meeting; occasionally virtual.*
Meetings are scheduled 6 times per year, schedule varies. Members living in the Orlando / Clermont area, please watch your email for meeting information and instructions on how to RSVP.
Tampa
Support Group Leader: Sharah
Contact Information: tampasjogrenssg [at] gmail [dot] com (tampasjogrenssg[at]gmail[dot]com)
Meeting Schedule: *This is a virtual meeting.*
Meetings are scheduled monthly, generally held on the 2nd Thursday of each month at 3:00 - 4:00 pm EST. Members living in the Tampa / Suncoast area (from Tampa down the west coast to Marco Island), please watch your email for meeting information and instructions on how to RSVP.
Atlanta Area
Support Group Co-Leaders: Suzi Wixson and Lois Pippin
Contact Information: suziwixson [at] comcast [dot] net (suziwixson[at]comcast[dot]net) or (770) 367-6062 // Lspippin [at] mindspring [dot] com (Lspippin[at]mindspring[dot]com) or (404) 373-1403
Meeting Schedule: *This is a virtual meeting.*
Meetings are scheduled 6 times per year, generally held on the 3rd Saturday of every other month at 12:30 - 2:30 pm EST. Members living in the Atlanta area, please watch your email for meeting information and instructions on how to RSVP.
Support Group Leader: Kathi
Contact Information: hawaiisjogrensgroup [at] gmail [dot] com (hawaiisjogrensgroup[at]gmail[dot]com)
Meeting Schedule: *This is a virtual meeting.*
Meetings are scheduled 4 times per year, generally held on the 2nd Tuesday every three months at 7:00 - 9:00 pm HST. Members living on the Hawaiian Islands, please watch your email for meeting information and instructions on how to RSVP.
Support Group Leader: We are currently seeking volunteer Support Group Leaders for Idaho. Interested in learning more? Please review our support group information sheet here and email info [at] sjogrens [dot] org (info[at]sjogrens[dot]org) if you feel this volunteer opportunity is a good match for you!
Chicago Area
Support Group Co-Leaders: Karen M. and Elaine R.
Contact Information: klweis [at] yahoo [dot] com (klweis[at]yahoo[dot]com)
Meeting Schedule: *This is a virtual meeting.*
Meetings are scheduled 4 times per year, schedule varies. Members living in the Chicago area, please watch your email for meeting information and instructions on how to RSVP.
Indianapolis
Support Group Contact: Vivian Kistler
Contact Information: vivkistler [at] yahoo [dot] com (vivkistler[at]yahoo[dot]com) or (317) 408-2844
Meeting Schedule: *This is a virtual meeting.*
Meetings are scheduled monthly, generally held on the 4th Thursday of each month at 7:00 - 8:30 pm EST. Members living in the Indianapolis area, please watch your email for meeting information and instructions on how to RSVP
Kansas City
Support Group Co-Leaders: Joi and Kat
Contact Information: kcsjogrensgroup [at] gmail [dot] com (kcsjogrensgroup[at]gmail[dot]com) or 913-908-8909
Meeting Schedule: *This is a virtual meeting.*
Meetings are scheduled 4 times per year, generally held on the 1st Saturday every three months at 10:00 - 11:30 am CST. Members living in the Greater Kansas City areas of Kansas and Missouri, please watch your email for meeting information and instructions on how to RSVP.
Baltimore
Support Group Leader: Renee Phillips
Contact Information: BaltimoreMDSjogrensGroup [at] gmail [dot] com (BaltimoreMDSjogrensGroup[at]gmail[dot]com) or (410) 790-9822
Meeting Schedule: *This is a virtual meeting.*
Meetings are scheduled 6 times per year, generally held on the 3rd Tuesday of every other month at 7:00 - 8:30 pm EST. Members living in the Baltimore area, please watch your email for meeting information and instructions on how to RSVP.
Montgomery
Support Group Leader: Bonnie
Contact Information: MontgomeryCtyMDSjogrensGroup [at] gmail [dot] com (MontgomeryCtyMDSjogrensGroup[at]gmail[dot]com)
Meeting Schedule: *This is a virtual meeting.*
Meetings are scheduled 6 times per year, generally held on the 1st Sunday of every other month at 1:00 - 3:00 pm EST. Members living in the Montgomery County area, please watch your email for meeting information and instructions on how to RSVP
Boston & Beyond
Support Group Co-Leaders: Lisa D. and Cathy
Contact Information: bostonsjogrensgroup [at] gmail [dot] com (bostonsjogrensgroup[at]gmail[dot]com)
Meeting Schedule: *This is a virtual meeting.*
Meetings are scheduled 6 times per year, generally held on the 1st Wednesday of every other month at 6:30 - 8:00 pm EST. Members living in Massachusetts and Northern Rhode Island, please watch your email for meeting information and instructions on how to RSVP.
Macomb County
Support Group Leader: Barbara Skovran
Contact Information: barbs09 [at] gmail [dot] com (barbs09[at]gmail[dot]com)
Meeting Schedule: *This is a virtual meeting.*
Meetings are scheduled 6 times per year, generally held on the 2nd Tuesday of every other month at 7:00 - 9:00 pm EST. Members living in the Macomb County area, please watch your email for meeting information and instructions on how to RSVP.
MN Support Group
Support Group Co-Leaders: Marie MV. and Lindsay N.
Contact Information: mneveningsjogrens [at] gmail [dot] com (mneveningsjogrens[at]gmail[dot]com)
Meetings are scheduled monthly, generally held on the 1st Monday of each month at 6:00 - 7:15 pm CST. Members living in Minnesota, please watch your email for meeting information and instructions on how to RSVP.
Kansas City
Support Group Co-Leaders: Joi and Kat
Contact Information: kcsjogrensgroup [at] gmail [dot] com (kcsjogrensgroup[at]gmail[dot]com) or 913-908-8909
Meeting Schedule: *This is a virtual meeting.*
Meetings are scheduled 4 times per year, generally held on the 1st Saturday every three months at 10:00 - 11:30 am CST. Members living in the Greater Kansas City areas of Kansas and Missouri, please watch your email for meeting information and instructions on how to RSVP.
Support Group Contact: Lauren
Contact Information: njsjogrensgroup [at] gmail [dot] com (njsjogrensgroup[at]gmail[dot]com)
Meeting Schedule: *This is a virtual meeting.*
Meetings are scheduled 6 times per year, generally held on the 1st Wednesday of every other month at 7:00 - 8:30 pm EST. Members living in New Jersey, please watch your email for meeting information and instructions on how to RSVP.
Support Group Contact: Andrea Dowdy
Contact Information: andrea [dot] dowdy [at] yahoo [dot] com (andrea[dot]dowdy[at]yahoo[dot]com)
Meeting Schedule: *This is a virtual meeting.*
Meetings are scheduled 4 times per year, generally held on the 1st Saturday every three months at 10:00 am - 12:00 pm MST. Members living in New Mexico, please watch your email for meeting information and instructions on how to RSVP.
We are currently seeking volunteer Support Group Leaders for New York City and Long Island. Interested in learning more? Please review our support group information sheet here and email info [at] sjogrens [dot] org (info[at]sjogrens[dot]org) if you feel this volunteer opportunity is a good match for you!
Upstate New York
Support Group Leader: Jen Austin
Contact Information: upstatenysjogrensgroup [at] gmail [dot] com (upstatenysjogrensgroup[at]gmail[dot]com) or (716) 980-5980
Meeting Schedule: *This is a virtual meeting.*
Meetings are scheduled monthly, generally held on the 2nd Sunday of each month at 7:00 - 8:30 pm EST. Members living in Upstate New York, please watch your email for meeting information and instructions on how to RSVP.
We are currently seeking volunteer Support Group Leaders for North Carolina. Interested in learning more? Please review our support group information sheet here and email info [at] sjogrens [dot] org (info[at]sjogrens[dot]org) if you feel this volunteer opportunity is a good match for you!
Central North Carolina
Support Group Leader: Diane White
Contact Information: centralncsjogrensgroup [at] gmail [dot] com (centralncsjogrensgroup[at]gmail[dot]com)
Meeting Schedule: *This is a virtual meeting.*
Meetings are scheduled 6 times per year, generally held on the 3rd Wednesday of every other month at 6:00 - 7:30 pm EST. Members living in Central North Carolina, please watch your email for meeting information and instructions on how to RSVP.
Formerly the "Seacoast" Support Group, now expanded to include all of ME, NH & VT
Support Group Leader:
Contact Information:
Meeting Schedule: *This is a virtual meeting.*
Meetings are TBA. Members living in the Northern New England area (including Maine, New Hampshire, and Vermont), please watch your email for meeting information and instructions on how to RSVP.
We are currently seeking volunteer Support Group Leader to lead groups in Northern Ohio (Cleveland) and Western OH (Cincinnatti). Interested in learning more Please review our support group information sheet here and email info [at] sjogrens [dot] org (info[at]sjogrens[dot]org) if you feel this volunteer opportunity is a good match for you
Columbus/Central Ohio
Support Group Leader: Gayle Wanamaker
Contact Information: Wanamakergayle [at] gmail [dot] com (Wanamakergayle[at]gmail[dot]com)
Meeting Schedule: *This is a virtual meeting.*
Meetings are scheduled 6 times per year, generally held on the 3rd Wednesday of every other month at 7:00 - 9:00 pm EST. Members living in the Central Ohio / Columbus area, please watch your email for meeting information and instructions on how to RSVP.
Edmond
Support Group Leader: Sharon J Abrams
Contact Information: (405) 330-2356
Meeting Schedule: Full-day, in-person, educational meeting scheduled in the Fall. Members living in Oklahoma, please watch your email for details.
We are currently seeking volunteer Support Group Leaders to lead a virtual group in Portland. Interested in learning more? Please review our support group information sheet here and email mchampigny [at] sjogrens [dot] org (info[at]sjogrens[dot]org) if you feel this volunteer opportunity is a good match for you!
We are currently seeking volunteer Support Group Leaders for Central Pennsylvania and Western Pennsylvania (Pittsburgh). Interested in learning more Please review our support group information sheet here and email info [at] sjogrens [dot] org (info[at]sjogrens[dot]org) if you feel this volunteer opportunity is a good match for you!
Philadelphia
Support Group Leader: Barbara
Contact Information: MyPhillySjogrens [at] gmail [dot] com (MyPhillySjogrens[at]gmail[dot]com) or (610) 653-4689
Meeting Schedule: *This is a virtual meeting.*
Meetings are scheduled 4 times per year, generally held on the 3rd Saturday every three months at 10:00 am - 12:00 pm EST. Members living in the Philadelphia area, please watch your email for meeting information and instructions on how to RSVP.
Boston and Beyond
Support Group Co-Leaders: Lisa D. and Cathy
Contact Information: %20bostonsjogrensgroup [at] gmail [dot] com (bostonsjogrensgroup[at]gmail[dot]com)
Meeting Schedule: *This is a virtual meeting.*
Meetings are scheduled 6 times per year, generally held on the 1st Wednesday of every other month at 6:30 - 8:00 pm EST. Members living in Massachusetts and Northern Rhode Island, please watch your email for meeting information and instructions on how to RSVP.
Support Group Contact: Danita Calvert
Contact Information: scvirtualsjogrensgroup [at] gmail [dot] com (scvirtualsjogrensgroup[at]gmail[dot]com)
Meeting Schedule: *This is a virtual meeting.*
Meetings are scheduled 6 times per year, generally held on the 3rd Thursday of every other month at 6:30 - 7:30 pm EST. Members living in South Carolina, please watch your email for meeting information and instructions on how to RSVP.
We are currently seeking a volunteer Support Group Leader for Nashville. Interested in learning more? Please review our support group information sheet here and email info [at] sjogrens [dot] org (info[at]sjogrens[dot]org) if you feel this volunteer opportunity is a good match for you!
We are currently seeking volunteer Support Group Leaders for Austin and Houston. Interested in learning more? Interested in learning more? Please review our support group information sheet here and email info [at] sjogrens [dot] org (info[at]sjogrens[dot]org) if you feel this volunteer opportunity is a good match for you!
Dallas
Support Group Leaders: Amy Junod and Jennifer Chavers
Contact Information: (214) 334-2450 (Amy) // (469) 688-5028 (Jennifer)
Meeting Schedule: *This is a virtual meeting.*
Meetings are scheduled 6 times per year, generally held on the 2nd Saturday of every other month at 10:30 am - 12:00 pm CST. Members living in the Dallas area, please watch your email for meeting information and instructions on how to RSVP.
San Antonio
Support Group Co-Leaders: Kim Dross
Contact Information: Kim: kd196310308 [at] aol [dot] com
Meeting Schedule: *This is a virtual meeting.*
Meetings are scheduled 6 times per year, generally held on the 3rd Thursday of every other month at 7:00 - 8:30 pm CST. Members living in the San Antonio area, please watch your email for meeting information and instructions on how to RSVP.
Central Virginia
Support Group Leader: Mary Beth A.
Contact Information: centralvasjogrens [at] gmail [dot] com (centralvasjogrens[at]gmail[dot]com) or 703-501-7462
Meeting Schedule: *This is a virtual meeting.*
Meetings are scheduled 4 times per year, schedule varies. Members living in the Central Virginia / Charlottesville and Richmond area, please watch your email for meeting information and instructions on how to RSVP.
Hampton Roads/Norfolk
Support Group Leader: Bonnie Elverum
Contact Information: elverum4 [at] gmail [dot] com (elverum4[at]gmail[dot]com) or (757) 268-4928
Meeting Schedule: *This is a virtual meeting.*
Meetings are scheduled 6 times per year, generally held on the 3rd Wednesday of every other month at 6:30 - 7:30 pm EST. Members living in the Hampton Roads / Norfolk area, please watch your email for meeting information and instructions on how to RSVP.
Northern Virginia
Support Group Leader: Mary Ann J.
Contact Information: novasjogrensgroup [at] gmail [dot] com (novasjogrensgroup[at]gmail[dot]com)
Meeting Schedule: *Mix of virtual and in-person meetings.*
Meetings are scheduled 4-6 times per year, schedule varies. Members living in Northern Virginia, please watch your email for meeting information and instructions on how to RSVP.
Western Virginia
Patient Support: Carol Watson
Contact Information: cmhwatson [at] comcast [dot] net (cmhwatson[at]comcast[dot]net) or (540) 389-7503
Meeting Schedule: Meetings for this group are not scheduled, but members are welcome to attend the Central Virginia group. Members living in the Western Virginia / Salem area, please watch your email for meeting information and instructions on how to RSVP to the Central Virginia virtual group meetings.
Washington State Virtual Group
Support Group Leader: Susan Wallace
Contact Information: smw2452 [at] gmail [dot] com (smw2452[at]gmail[dot]com) or (206) 498-0330
Meeting Schedule: *This is a virtual meeting.*
Meetings are scheduled 6 times per year, schedule varies. Members living in Washington State, please watch your email for meeting information and instructions on how to RSVP.
Wisconsin
Support Group Leader: Diana B.
Contact Information: Madisonsjogrensgroup [at] gmail [dot] com (Madisonsjogrensgroup[at]gmail[dot]com)
Meeting Schedule: *This is a virtual meeting.*
Meetings are scheduled monthly, generally held on the 3rd Tuesday of each month at 12:00 - 1:00 pm CST. No meetings are held in August and December. Members living in Wisconsin, please watch your email for meeting information and instructions on how to RSVP.