Sjögren’s is a complex disease and unfortunately, there is no single prognosis or disease progression. The Sjögren’s Foundation has developed numerous tools and resources for patients to learn about Sjögren’s and how it affects patients.
Here are a few resources that can help you on your journey:
The Living with Sjögren’s patient survey was conducted in the United States by Harris Poll on behalf of the Sjögren's Foundation. This research, examined the variety and severity of experiences Sjögren's patients have with their disease and the impact it has on their quality of life.
Clinical Practice Guidelines were developed as a roadmap for physicians and dentists to use in treating Sjögren’s patients.
About half of Sjögren’s patients have another autoimmune disease. In addition, Sjögren’s patients also have additional overlapping diseases.
The Sjögren’s Foundation is dedicated to providing the most up-to-date information for patients through our brochures and resources sheets.
The Sjögren’s Foundation, with the help of many patients, has established a list of essential survival tips for Sjögren’s patients.
Finding support by learning about other’s journey is helpful to many patients. Faces of Sjögren’s include stories from patients and family members, sharing their Sjögren’s journey.
There are over 65 Sjögren's support groups supported by the Foundation, including international and specialized support groups, as well as an online forum called Smart Patients.
Clinical trials in Sjögren’s are happening throughout the United States. These trials will ultimately lead to new treatment options Sjögren’s patients and are designed to add to our medical knowledge in the care and treatment of Sjögren’s patients.
The Future of Sjögren’s
The future of Sjögren’s is ever evolving. That is the why the Foundation funds and leads a number of research initiatives to help advance our knowledge of the disease. To learn more about these initiatives, please visit: