Something we frequently hear from patients is that while no one plans to get an autoimmune disease, there is some sense of relief when they finally get their Sjögren's diagnosis. After what might be years of uncertainty, they can finally put a name to their disease, and start taking the necessary steps to living a full life with Sjögren's.
Resources handpicked for patients who are newly diagnosed and are looking for a place to begin.
Your Future with Sjögren's
No matter how long you've been diagnosed, it is important to keep up with your disease since Sjögren's can evolve over time.
A collection of tips and ideas to help manage your disease.
Faces of Sjögren's
Feeling alone? Check out stories of other Sjögren's patients.
Family & Friends Information
Is someone you love affected by Sjögren's? Use these resources to find out how to best support them.
Sjögren's in Children
Sjögren's isn't only a disease for adults and can manifest different symptoms for pediatric patients.
Sjögren's in Men
The Foundation continues to expand our resources for men, as we are seeing more diagnosed with Sjogren’s.
Support Groups & Networks
There are over 65 Sjögren's support groups supported by the Foundation, including international and specialized support groups, as well as an online forum.
Clinical trials are designed to add to medical knowledge and most importantly, the results of these trials can make a difference in the care and treatment of Sjögren’s patients.
The Sjögren’s Foundation is dedicated to providing the most up-to-date information to patients and healthcare providers.
Living with Sjögren's Patient Survey
The Living with Sjögren’s patient survey was conducted in the United States by Harris Poll on behalf of the Sjögren's Foundation. The research, conducted among 2,962 adults aged 18+ who reported having been diagnosed with Sjögren's by a medical professional or doctor, examined the variety and severity of experiences Sjögren's patients have with their disease and the impact it has on their quality of life.
Living with Sjögren's Survey (PDF - 392 KB)