The Language Matters survey is now closed. The Sjögren's Foundation would like to thank everyone who participated.
The Sjögren’s Foundation has been leading the charge to change worldwide perceptions of Sjögren’s through the language we use. We began taking action by dropping the word "syndrome" from our name and are now helping to lead the international discussion on formal language changes.
As a Sjögren’s patient, your opinion matters. We encourage you to participate in the survey below and ensure the patient voice is included in these discussions on language changes. The Foundation will share your views at the upcoming International Symposium on Sjögren’s.