This is Sjögren's- You are not alone!

The Foundation knows how isolating being diagnosed with an invisible illness can be, but you are not alone. There are an estimated 4 million Americans suffering from Sjögren’s, both men and women of different ages and ethnicities.

With the launch of the SSF 5-Year Breakthrough Goal, 50in5: “To shorten the time to diagnose Sjögren’s by 50% in 5 years” we are also hoping to transform how Sjögren’s is understood.

In this section of our website, patients share their journey with Sjögren's starting from their first thought after being diagnosed to where they are now.

We hope these stories inspire you, like they inspired us.

Erin's Journey

Sara's Journey

Lucy's Journey

AJ's Journey

Renee's Journey

Shelley's Journey

Joe's Journey

Melaca's Journey

Abby's Journey

KatherineKatherine's Journey

JenniferJennifer's Journey

Patricia's Journey

JohnJohn's Journey

Karen's Journey 

Nancy's Journey 

Shelly's Journey

Connie's Journey

Donna's Journey

Iris's Journey

Sarah's Journey

 PhiliciaPhlicia's Journey

Sheila's Journey


Beverly's Journe

Share Your Story with us!

Whether you are a patient, doctor, loved one or family member, we want to know your own personal experience with Sjögren's.  

When submitting your story:

  •     • Stay within 250 word
  •     • Include aspects of how Sjögren's has affected your life and ways you have been able to effectively cope with your symptoms
  •     • Include a personal few words of inspiration
  •     • At the beginning of your story, please complete the following phrase: “When I was diagnosed with Sjögren's, my first thought was…”
  •     • And don’t forget to include a picture of you!

Email your story to with the subject “Faces of Sjögren’s.” Together we will conquer Sjögren’s!