Since the establishment of the first Support Group, started by Elaine K. Harris in 1983, we have grown to sponsor over 65 groups throughout the United States and Canada.
These groups, run by volunteers, provide Sjögren's patients who are SSF members and family members an opportunity to share their advice and tips for living more comfortably with Sjögren's.
Much can be learned at a support group meeting, whether it is patient-to-patient sharing or listening to an informative presentation by a healthcare professional or other expert. We encourage you – if you are suffering from the symptoms of Sjögren's or diagnosed with Sjögren's – to attend a support group meeting in your area.
>> See our listing for International Support Groups if you are from outside the United States.
***Attention Company Representatives
SSF Support Groups were created as a benefit for Sjögren's patients and are only open to SSF members and their family members. If you would like to contact patients through a SSF local support group, all companies and their representatives must first contact Kathy Ivory at firstname.lastname@example.org
The Foundation has established nearly 200 local volunteers throughout the United States and Canada who can provide one-on-one support and information by telephone. These contact persons are Foundation members and patients who are knowledgeable about Sjögren's. They will provide information, especially about day-to-day living, coping strategies, education and support, all by telephone.
If you are interested in getting in touch with a contact volunteer, please call the Sjögren's Syndrome Foundation at 1-800-475-6473.